Victoria Nedza of Pennsylvania has been living with a rare form of muscular dystrophy, but she says she needs help with too many basic things. She says she couldn't use commercially available grabbers ...
6-year-old treated for muscular dystrophy at Chicago children's hospital Lurie Children's Hospital in Chicago is the first hospital in Illinois to administer a gene therapy to treat Duchenne muscular ...
Alexandra Bonner, MD, of the Center for Pediatric Neurosciences at Cleveland Clinic emphasizes the importance of working closely with subspecialists to provide the optimal level of care. (2:44) From ...
Editor’s note: This is an automatically generated transcript. Please notify editor@healio.com if there are concerns regarding accuracy of the transcription. Muscular dystrophy, as a category, is quite ...
In this Healio exclusive interview, John Brandsema, MD, a pediatric neurologist at Children's Hospital of Philadelphia, discusses recent advancements and challenges in the treatment of Duchenne ...
DVA 2.0 is a home-based tool for assessing movement in DMD patients, using caregiver-recorded videos evaluated by certified therapists. The tool's total composite severity percentage showed excellent ...
Facioscapulohumeral muscular dystrophy (FSHD) is a genetic condition that can lead to the slow deterioration of muscles, predominantly in the face, shoulder blades, and upper arms. Facioscapulohumeral ...
More than 30 rare muscular dystrophy types cause progressive muscle weakness from inherited gene mutations. Combined, they affect about 1 in 5,000 to 8,000 people. Common subtypes vary by age of onset ...
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