When it comes to Duchenne Muscular Dystrophy, what a parent sees is more than just the diagnosis, it’s the quiet courage behind every struggle. She sees her child endure long stretches when he’d rather be playing. She watches lose a little physical strength every day and try to find solutions to find other ways to continue with his favourite activities, if possible, or invest time into other or new interests. Parents help their child get ready for therapies when he’d rather just stay home and be

Living with Duchenne isn’t just a diagnosis. It’s waking up every day in a body that slowly does less and less of what you ask it to do. Imagine being fully aware of everything around you… but not being able to move the way you want to. They way you could before. Imagine sitting in your chair watching your friends run, jump, line up for rides, chase each other, run off from you - and knowing your body won’t let you join them. Imagine having an itch and needing to call someone to scratch it. Want